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Family Resources
Unique is a UK based non-profit that provides support and information on rare diseases. Their guide on CLTC-Related Disorder is an excellent resource.
The National Organization for Rare Diseases is a wonderful group and can provide general information on rare diseases. CLTC-Related Disorder is still in the earliest stages of understanding and does not yet have a NORD site.
Our site is proud to celebrate our one year anniversary on Rare Disease Day 2023! Read more about what you can do to spread awareness of rare diseases.
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